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Re: The Genetics of OMA

From: Marian Buckle, e-mail: jnswilson@msn.com
Date: 22 Feb 2000 at 15:12
Replying to: message 410.html

I also have a 2yr old daughter with OMA. I am looking for some information on this disorder. She had a tumor on her adrenaline gland, which has been removed. My daughter is now taking steroids almost everyday. She is not talking and sometime she is unable to walk.She also tremors alot and her eyes are never steady. I would like to learm more about. She is seeing an occupational therapist and a speech therapist. But she still is not progressing in anyway. I need help!!!I am literally going to go crazy, I jsut can not take it anymore. She cries most of the day, and I have to hold her on my shoulder all dat long. When I put her down she screams and is very angry. I don't know how long she is going to be this way. Does anyone know? I just want to know she will have to live her life this way. If anyone can help I would really appreciate it. Please help me!!!Thanks for reading my letter. I do apologize, I know I am rambling, but I have so many feelings going through me right now.


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