It's very interesting to read something from an adult with OMA. Our son is four now. His head shaking has lessened but he is late developing in many ways and has now been referred for speech therapy. We are an English family living in Italy so he is also learning two languages. I'm beginning to feel more anxious now as I feel it won't be long before other children start to tease him about his head shaking. He is generally a very happy boy, very lively and incredibly observant. Sometimes he is frustrated that he can't communicate that well with other children. His eye specialist in London, who seems to have more knowledge about OMA than most of the medical experts we have met, said her advice to her is to treat him like a normal boy, which we have always tried to do. But clearly now he needs some help with his development. If you have any thoughts to pass on on what we might expect in the future, and how we can help him I would appreciate it very much,
Clarissa Killwick
Italy