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Re: Duanes Syndrome

From: Syndi, e-mail: tswinsc@aol.com
Date: 07 Sep 2002 at 05:09
Replying to: message 1030.html

One of my 18 month old twin daughters has Duanes Syndrome. Hers is bilateral and we have been going through hearing exams. Please feel free to contact me. I was devastated when they told me but more so because they said this was permanent and there was nothing that could be done. I did some research and found out how important it was to get hearing evaluations done as well.
I have hooked up with Boston Children's Hospital here in the United States because they are doing research on the genetic Duanes. They have loads of info.
This is also a web site that offers some additional info.
http://www.strabismus.org/Duane_Syndrome.html
please feel free to ask me any questions.
syndi


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