Dear Marta, like you, we were the only people in Australia with a son with OMA, so we were going through very unclear, things through the years, but our son is now nearly 21. At the time there was only 3 in America. We didnt have the use of such an excellent website that we have only recently come across. I also think the children are extremely clever, being able to talk in all different languages around the world. My son also learnt to speak German at school as that was the language taught at the school our children attended. He has two sisters without OMA. I have written many messages throughout this website, which you may find can help you. Jason had physio therapy, speech and ocupational therapy he also had help from the blind school. He started twice a week at a therapy place for the disabled, and also went to pre school at 2yrs 3 months I attended both places everyweek and was taught how to help my son. The week before he started going there was when he first stepped. He used sign language at three which was great because we could communicate. He was taught other ways with pictures etc that he could communicate with. Some people describe their walk like walking on a moving ship and that sounds like a pretty good description. It does get better, everything gets better. The eye control and the speech seem to be the hardest. These children are extemely bright, they just need to be taught. If you have questions please feel free to ask.
Take care
Sandy Brian Jason