My son Ferran was diagnostic when he wad 14 months old, now
he is 5 years old but i never had any information from the
doctors, we are spanish and he is the only little boy with this
disorder in Spain.No one know what would be the best to do,
we have the support of blind society , and estimulation, all i read
today has confort me a lot because i see a open door to get
information for the future and present. My question is if there is
any child that has similar symtoms:
+ difficulty to speak
+ apraxia oculomotora type II
+ convulsions
+ no control of his body when walking or running
+hearing problems
+ He is very happy, attent to everything and but slow to answer
questions but he understand everything and use different tools
to communication.
I have a lot of questions, but knowing that inow we can have
contact with all of you make's me feel happier'.
hopping you understand me,
regards, MARTA.