I read a lot of letters from parents who feel isolated, frustrated and
unsure about how to best help their child,and I am just such a parent.
I would like to suggest setting up a local support group,
as there is nothing more helpful than talking to another parent who
can empathise totally with your situation. Emails and message boards
are great,but I feel a support group would be a good way to start
networking with people in your own area.
I live in the South East of England (near London), and am keen to hear from any
parents of OMA childern who would be interested in meeting up for
discussion and exchange of ideas, particularly about what is available
to an OMA child in terms of the health services, therapy, education
etc.